More Updates

Every week is just so packed lately that I loose track of a the updates. Here are the highlights:

• I'm 22 weeks, 5 days today. I am finding myself counting down the days until viability (24 weeks).

• I had my follow up anatomy scan last Friday, which was primarily focused on looking at their hearts. Everything looked great. Hearing good reports on my girls is such a blessing as everything else is so trying right now.

• I had my second infusion last Friday and am having my third one today. Overall they are going well in that I haven't had a major reaction. They are hard though. Last Friday left me with a huge and painful bruise on my arm from the IV. And the side effects are severe headache, light/sound sensitivity, and just a sick feeling (flu/sinus like). Last week the side effects lasted a shorter time than they did after the first infusion, which is both a blessing and a good sign that the side effects will either remain stable or lessen - but not get worse.

• The babies are really starting to move a lot. It's both very exciting and a little painful. Robert felt them move for the first time last week which was a very special moment.

• I have cribs. I ended up paying a little more for them but think they will be a great fit. They have arrived, but are still in boxes in the garage. One step at a time. Mostly just hopeful that neither is damaged from shipping.

• I am still facing an ongoing and uphill battle for medical care. Some battles are small, while others are huge: 
• I had my TSH drawn last Friday. Results should take a few hours, but on Monday there were still no results. After multiple phone calls I discovered my blood had been drawn, but not tested. Really, how does this even happen?
• During one of these calls to the infusion center where my blood was drawn I was told by a nurse that on Friday I had been given a cancer drug rather than IVIG. When I started freaking out she recanted and said she "remembered me" and was sure I got IVIG. I have since confirmed that the only medication checked out from the pharmacy on Friday for me was IVIG, but still scary to think about. 
• And the huge battle? My treatment protocol ordered is just wrong! Standard protocol (national accepted; developed by the experts) should be weekly IVIG from Weeks 20-31 and twice weekly IVIG from Weeks 32-37. What was ordered instead: weekly IVIG from Weeks 20-27, twice weekly IVIG from Weeks 28-29, and NO IVIG from Weeks 30-37. Considering the antibody reaction only gets stronger and more dangerous closer to delivery this is absolutely CRZAY! I know in the end this will be fixed (I will be sure of it), but it is so absurd that such wrong treatment could be ordered. To think, if I didn't know better to throw such a fit to my doctors...

• Tuesday is my next growth scan